| 王鹏,姚佳,谢仙萍,等.肝硬化失代偿期病人自我管理障碍因素的质性研究[J].安徽医药,2024,28(4):737-741. |
| 肝硬化失代偿期病人自我管理障碍因素的质性研究 |
| A qualitative study on the barriers of self-management in patients with decompensated cirrhosis |
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| DOI：10.3969/j.issn.1009-6469.2024.04.021 |
| 中文关键词: 肝硬化 自我护理 失代偿期 阻碍因素 质性研究 |
| 英文关键词: Liver cirrhosis Self care Decompensated Hindrance factors Qualitative research |
| 基金项目:山西省医学重点科研项目( 2021XM42) |
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| 中文摘要: |
| 目的探讨影响肝硬化失代偿期病人自我管理的障碍因素，为制定提高肝硬化失代偿期病人自我管理水平策略提供参考依据。方法运用现象学研究法，采用目的抽样选取 2022年 3—4月山西白求恩医院消化内科 13例肝硬化失代偿期病人作为研究对象进行半结构化访谈。结果提炼出自我管理障碍内因(不良心理及情绪、认知偏差、既往习惯影响、多种疾病共存)，自我管理障碍外因(家庭 -社会支持缺乏、经济压力、信息获取障碍、公共卫生事件) 2个主题， 8个亚主题。结论目前肝硬化失代偿期病人存在自我管理不足的现象，大多数病人对于如何实现自我管理往往不知所措，自我管理体验不良；同时病人自我管理行为中断性较高。医护人员及有关部门应加强对该疾病自我管理的重视，提供切实有效的帮助，以提高病人自我管理水平，全面改善生活质量。 |
| 英文摘要: |
| Objective To explore the barriers to self-management in patients with decompensated liver cirrhosis, and to provide refer? ence for developing strategies to improve self-management ability of patients with decompensated liver cirrhosis.Methods Using phe?nomenological method, 13 patients with decompensated cirrhosis in the Department of Gastroenterology, Shanxi Bethune Hospital fromMarch to April in 2022 were selected as subjects by purposive sampling for semi-structured interview.Results Two themes and eight sub-themes were identified, including internal causes of self-management disorders (negative psychology and emotion, cognitive bias,influence of past habits, coexistence of multiple diseases) and external causes of self-management disorders (lack of family-social sup? port, economic pressure, information access barriers, public health events).Conclusions At present, there is insufficient health self-management in patients with decompensated cirrhosis. Most patients are often at a loss for how to achieve health self-management and have poor experience of health self-management. Patients with decompensated cirrhosis high behavior interruption. Medical staff andrelevant departments should pay more attention to self-management of the disease, provide practical and effective help, improve pa? tients' self-management ability and improve the quality of life in an all-round way. |
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